International Albinism Awareness Day, observed on June 13th, is a time to recognize and protect the human rights of persons with albinism worldwide. The United Nations has played a pivotal role in this advocacy, establishing the day to foster greater inclusion and to combat the discrimination and violence faced by individuals with albinism.
Points to note about Albinio
Albinism is a genetic condition characterized by a lack of melanin pigment in the skin, hair, and eyes, affecting individuals across all racial and ethnic groups. Globally, the prevalence of albinism varies, with estimates suggesting about 1 in 18,000 to 20,000 people in the U.S. have some form of the condition, while in Africa, the rate is higher at approximately 1 in 5,000. People with albinism often face multiple and intersecting forms of discrimination and are subject to higher health risks, including visual impairments and increased vulnerability to skin damage from ultraviolet rays. Despite these challenges, progress has been made in raising awareness and improving the human rights situation for people with albinism. As per UN, here are multiple points which is relevant to Albino people:
- Albinism is a genetic condition inherited from both parents that occurs worldwide, regardless of ethnicity or gender.
- The common lack of melanin pigment in the hair, skin and eyes of people with albinism causes vulnerability to sun exposure, which can lead to skin cancer and severe visual impairment.
- As many as 1 in 5,000 people in Sub-Saharan Africa and 1 in 20,000 people in Europe and North America have albinism.
- In some countries people with albinism suffer discrimination, poverty, stigma, violence and even killings.
- In some countries, women who give birth to children with albinism are repudiated by their husbands, and their children abandoned or the victims of infanticide.
- The movie industry has seldom portrayed people with albinism accurately, preferring to depict them as villains, demons or freaks of nature.
- Violence against people with albinism is largely met by social silence and indifference and is seldom followed by investigations or the prosecution of perpetrators.
- The lack of melanin means persons with albinism are highly vulnerable to developing skin cancer. In some countries, a majority of persons with albinism die from skin cancer between 30 and 40 years of age.
- Due to a lack of melanin in the skin and eyes, persons with albinism often have permanent visual impairment.
History of International Albinism Awareness Day
International Albinism Awareness Day, observed annually on June 13th, is a day dedicated to increasing public understanding of albinism and eliminating all forms of discrimination and violence against persons with albinism. The United Nations General Assembly proclaimed this day on December 18, 2014, recognizing the need for global advocacy for albinism. The resolution was a result of efforts led by the late Ambassador Yusuf Mohamed Ismail Bari-Bari of Somalia, in collaboration with the Canadian NGO Under the Same Sun. This day serves as a reminder of the challenges faced by individuals with albinism and the importance of their human rights. Each year, a specific theme is chosen to guide the celebrations and raise awareness, reflecting the progress and ongoing efforts towards inclusivity and protection of rights for those with albinism.
Theme of International Albinism Awareness Day 2024
Each year, International Albinism Awareness Day is observed with a specific theme to address various aspects of food safety. These themes are designed to focus attention on critical issues and mobilize efforts to address them. For instance:
International Albinism Awareness Day, observed on June 13th, is a time to recognize and protect the human rights of persons with albinism worldwide. The theme of International Albinism Awareness Day 2024 is: “10 years of IAAD: A decade of collective progress.” This theme invites us to:
- Celebrate the strides made within the movement, with renewed commitment for the future.
- Highlight the tireless efforts of albinism groups from around the world.
- Reflect on the continued legal, policy and practical changes still required to ensure the full and equal enjoyment of rights by persons with albinism.
Whereas theme of previous years is concerned, here is summary of theme of previous years:
- 2023: Inclusion is strength
- 2022: United in making our voice heard
- 2021: Strength beyond all odds
- 2020: Made to shine
- 2019: Still standing strong
- 2018: Shining our light to the world
- 2017: Advancing with renewed hope
- 2016: Celebrate diversity; promote inclusion; protect our rights
Significance of International Albinism Awareness Day
International Albinism Awareness Day (IAAD) is observed annually on June 13 to raise awareness about albinism and the challenges faced by individuals with this condition. Albinism is a rare genetic condition characterized by a lack of melanin pigment in the skin, hair, and eyes, leading to increased vulnerability to sun exposure and a higher risk of skin cancer. People with albinism often face significant social and cultural challenges, including discrimination and stigmatization. Advocacy for the rights of individuals with albinism has been ongoing for years, with numerous organizations and activists working to promote understanding and improve healthcare and social integration. The United Nations has been instrumental in these efforts, addressing the human rights violations and discrimination faced by people with albinism. On December 18, 2014, the UN General Assembly adopted a resolution proclaiming June 13 as International Albinism Awareness Day, recognizing the need to address the multiple forms of discrimination and raise global awareness about the condition.
How to Observe International Albinism Awareness Day
International Albinism Awareness Day, observed on June 13th, is a time to recognize the rights and achievements of individuals with albinism, and to continue the fight against the discrimination they face. To observe this day, one can attend awareness programs organized by community centers or advocacy groups, which aim to educate the public about albinism and how to support the inclusion and rights of those affected. Spreading the information learned from these programs to friends, family, and colleagues can amplify the message of inclusion and understanding.
Additionally, donating to organizations that support individuals with albinism, especially in regions where access to health care and protection from the sun is limited, can make a significant difference.
International Albinism Awareness Day dates
International Albinism Awareness Day has been observed annually on June 13 for the past five years, from 2019 to 2023. Here are the specific dates for each year:
- 2019: Thursday, June 13
- 2020: Saturday, June 13
- 2021: Sunday, June 13
- 2022: Monday, June 13
- 2023: Tuesday, June 13
- 2024: Thursday, June 13
- 2025: Friday, June 13
- 2026: Saturday, June 13
- 2027: Sunday, June 13
- 2028: Tuesday, June 13
Each year, the day is marked by various activities and events aimed at raising awareness about albinism and advocating for the rights and inclusion of individuals with this condition.
